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Daniel Zeichner MP visited Addenbrooke’s Hospital to mark the international Rare Diseases Day with a tour of Cambridge University Hospital’s facilities and a roundtable discussion with the local rare diseases community and staff carrying out cutting-edge research.

The visit was hosted by Professor John Bradley, Director of the National Institute for Health Research’s (NIHR) Biomedical Research Centre at Cambridge University Hospitals, and Professor Lucy Raymond, Professor of Medical Genetics and Neurodevelopment.

To mark International Rare Disease Day Daniel Zeichner visited the East of England Genomics Medicine Centre. Organisations involved in the project include Papworth Trust, Scope and Disability Rights UK. Daniel Zeichner’s visit will help raise awareness of the importance of rare disease research.

In Cambridge, the Rare Diseases Translational Research Collaboration (RD-TRC) has been joining in the celebrations over recent years with engagement events at Addenbrooke’s Hospital in 2014, 2015 and 2016. Each year, organisers decide a theme for the event and, in 2017, the theme is “Research”, providing an opportunity to showcase the benefits of rare disease research.

The celebrations come as the All Party Parliamentary Group for Rare, Genetic and Undiagnosed Conditions has called for an implementation plan for the Strategy for Rare Diseases in England.

Daniel Zeichner MP said: “It is estimated that 3.5 million people will be affected by a rare disease at some stage in their lives, so the pioneering research at Addenbrooke’s has the potential to change so many lives so much for the better. I know my parliamentary colleagues are working very hard to implement by 2020 the Strategy for Rare Diseases in England so that nobody is left behind just because they have a rare disease.”

Professor John Bradley said: “We are delighted to be able to share with Daniel Zeichner our achievements in rare diseases research, and to introduce him to patients and carers who are helping us to make these advances.”

Daniel Zeichner MP to attend Addenbrooke’s Hospital to mark Rare Diseases Day

Daniel Zeichner MP visited Addenbrooke’s Hospital to mark the international Rare Diseases Day with a tour of Cambridge University Hospital’s facilities and a roundtable discussion with the local rare diseases...

Daniel Zeichner MP joined the Chilean Ambassador, His Excellency Rolando Drago Rodriguez, and Heidi Allen MP to celebrate two Royal Navy veterans from Cambridge who took part in rescue efforts after a devastating earthquake in the Concepción region of Chile 78 years ago but who had never been acknowledged for their bravery.

Frank Burton, 98, and Basil Trott, 97, served in HMS Ajax and HMS Exeter. In January 1939, both ships were in the Pacific Ocean – off the coast of Chile, arriving at Valparaiso. Just before midnight, tremors were felt and, in the morning, it became clear a devastating earthquake had hit the area around Concepción.

Many thousands of people were killed and many more rendered homeless. The Ajax and Exeter were sent to the area to assist in clearing the area and evacuations.

There are still four members of the HMS Ajax and River Plate Veterans Association who assisted at the earthquake but Mr Burton and Mr Trott have never been acknowledged for their efforts.

The presentation ceremony will also be an opportunity to cement relations between Chile and Britain.

Daniel Zeichner MP said: “It is a privilege to be able to welcome His Excellency, the Ambassador of Chile, to Cambridge to present awards to our veterans who show that our armed forces have long performed hugely important relief and humanitarian work. It is wonderful that, nearly eighty years on, Frank and Basil will finally be commemorated for their bravery.”

Malcolm Collis, HMS Ajax and River Plate Veterans Association, said: “On behalf of the Association we are extremely grateful to the Ambassador for agreeing to present these medals to two of our veterans after so long.”

Daniel Zeichner MP to commemorate bravery of British troops for humanitarian efforts in Chile – nearly 80 years on!

Daniel Zeichner MP joined the Chilean Ambassador, His Excellency Rolando Drago Rodriguez, and Heidi Allen MP to celebrate two Royal Navy veterans from Cambridge who took part in rescue efforts...

Cambridge MP Daniel Zeichner asked a Government Minister what progress has been made on securing a data adequacy agreement with the EU.

Following a visit to Ninja Theory in Cambridge last week, Mr Zeichner said the UK video games sector is one of the UK’s great success stories. UKIE, the trade industry association, has consulted members and they have confirmed the importance of continuing data flows for the UK’s technology sector.

Currently, the UK’s data protection rules must be in line with EU data protection rules, but we do not yet know what our country’s data protection rules will look like after leaving the EU. The Minister confirmed no progress has been made on securing a data adequacy agreement with the EU post Brexit.

Daniel Zeichner MP said: “Our important tech sector is underpinned by data being able to flow freely across Europe. These cross-border data flows are essential if we want this excellent sector to continue to grow. The Minister’s response today was disappointing. I hope the Government recognises the strategic and economic value of data for our country, and acts fast to put data protection at the heart of its negotiations.”

Cambridge MP presses Government on post-Brexit data arrangements

Cambridge MP Daniel Zeichner asked a Government Minister what progress has been made on securing a data adequacy agreement with the EU.


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